New Page

Cute wildlife
My lovely family...
Me and all my kindy mates that are heading off to school
Ready set go!
Georgie goes to kindy too.
First day at kindy

Back to Kindy

How time flies! beleive it or not we are just over two weeks away from our next follow-up scan and 24 sleeps until we go on holiday (not that i'm counting of course!).

Joshua is doing amazingly well, two weeks ago his tube blocked with a natural medication he is on and as his appetite had been steadily picking up, I thought, right, time to see how we go here. So i am happy to say that joshua has been tube free now for two weeks and it isnt going back in!

He started back at kindy week before last, just a couple of hours a day and has been making steady progress since. Now he's going to Music on a Wednesday, Ready Set Go! a before school programme at School on a Wedensday afternoon and to kindy. So his life is full of all the good childish things that it should be. He's not so tired, most days now he goes without a sleep. His lips are pink, his eyelashes are lush and his hair is growing back really quickly!

Its amazing, even though his hair is still very thin and a bit patchy, we walk into school now and people dont see him. The difference of not having a tube is unbeleivable, suddenly people think that hes younger than what he is because he doesnt have a lot of hair. A Mum said to me at school the other day in Joshua's ready, set, go! class, 'is he three?'

One thing that was so nice to see, when Joshua got amoungst his peers, was that Joshua isnt shorter than them all. He's about avarage, which was so nice to see!

So thats all from us just now... we are living life, and enjoying every beautiful day.

Write a new comment: (Click here)

SimpleSite.com
Characters left: 160
DONE Sending...
See all comments

| Reply

Latest comments

13.07 | 21:33

Hi Anne-Marie - I found out about all this following a link someone liked on FB. I think of you all often. You brightened my life xxxxxx to you all.

...
04.06 | 18:38

That was and amazing story so pleased you are all doing well Kind Regards Sandra Rohrlach

...
08.03 | 17:48

Well done to all. Annemarie I did send a friends request on FB for "Josh updates" a couple of days ago(Mike Wish) but no reply.
Cheers to all from WA

...
25.09 | 20:01

We are staying at CCF Arrowtown, and we read about your family in the guestbook. You can read about our medullo journey at www.rorygardiner.co.nz. xox

...
You liked this page