Last week at home... 14th May

Wow... how time flies when your making banana cakes, vacumming floors, doing homework and watching Dora. Here we are at the end of the round.I rang up tonight to book us into RMH for Thursday night. We have audiology Thursday afternoon, Clinic Friday and then in On Sunday night again, for what I hope is our LAST EVER admission on ward 27A.

We have had such a lovely week or so. We had one admission over the weekend, for a temp, that didnt develop into anything. It was hard work keeping his bloods up this time, he required four transfusions. But par for the course really, his poor marrow has been zapped.

Pain has been much better this time. His gut has been much better too, only stopped for three days after the second slug of the Vincristine.

Today I made a video of him dancing, no music, he just wanted to dance. He was so funny!

Last week they had a big Farmers sale with 50% off. We Trotted off, with the intention of kitting out Daniel, and please, please, please! choose something Joshua! Truck T shirt now has a hole in the front, that little fingers are working on. Im not convinced Truckies gonna make it through the rest of treatment.

I showed him all the flash Lego shirts, Ben 10 Shirts, Angry Bird shirts and it was no... no... no! Until his Dad showed him this plain as duck water little jacket that was maroon and navy blue. It went on, in the shop. He slept in it that night. I said to Mum ferverously on the phone the next day. 'I think its taken!' (Like talking about a skin graft!) but well have to leave it on for three weeks to be sure, before we wash it! (and ill have to sneak out and buy three more!).

Truck T shirt has been cast aside on his terms.

But, I sewed up the hole tonight and he will go in the bag, ready for a last gasp in Auckland, even if hes just a cuddly. Hes been our mate all the way after all.

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Fay | Reply 16.05.2013 22.49

we send you all our love, best wishes and prayers for the last round of chemo
Annemarie and Joshua Love Love Love, Blessings Blessings Blessings xxxxxxxx

Mandy | Reply 14.05.2013 23.35

Was that the t-shirt he threw in the toilet last round??

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11.06 | 21:55

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13.07 | 21:33

Hi Anne-Marie - I found out about all this following a link someone liked on FB. I think of you all often. You brightened my life xxxxxx to you all.

04.06 | 18:38

That was and amazing story so pleased you are all doing well Kind Regards Sandra Rohrlach

08.03 | 17:48

Well done to all. Annemarie I did send a friends request on FB for "Josh updates" a couple of days ago(Mike Wish) but no reply.
Cheers to all from WA

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