Tuesday 23rd

Well I'm pleased to say that thus far in ward 27b things are stable and settled. Joshua was started on Friday on a drug called gabapentin, which I've been asking for, for a month now. Within 24 hours it had made a big difference to his tummy pain. He hasn't had morphine since. So we are onto our second day of chemo today, he vommitted a couple of times on waking this morning, but is playing, laughing and  showing his soft underbelly to the nurses, so they are all fluttering their eyelashes and telling him how gorgeous he is. (Which he is, of course!)

Hes also deliciously porky at the moment, he put on a little weight while at home and looks heaps better than some of the other kids. This is reassuring.

Im getting a bit anxious now, the end of the treatment phase is in sight. His last dose of chemo for the main part of round three goes in tomorrow, cells in Thursday and Friday and hopefully home on Saturday afternoon. With a bit of luck we might be home a bit more this round.  then just one more to go!

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HEATHER | Reply 29.04.2013 15.07

Great to hear things are going better for you Dear; Joshua you deserve those beads; you are a brave little man Love Heather @ Ken xxxxxxxxxxxxxxxx

Fay | Reply 26.04.2013 02.19

It sounds like things are going well Annemarie and that is great it certainly has been a long long road but hopefully the end is in sight xxxxxxxxxxxxxxxxxxx

Shirle | Reply 24.04.2013 22.26

Great news....praying that this round will continue to go well! and you will be home soon! Love Duncan and Shirley

Sandra rohrlach | Reply 24.04.2013 13.51

So pleased things are going better our love thoughts are with you all the time good luck with home this weekend love the photo

Bridget Pirie | Reply 24.04.2013 13.43

I've heard about gabapentin before. I'm so glad it's making a difference to Joshua. Hoping that this round goes swimmingly. So cool that you are getting there.

Judith | Reply 23.04.2013 17.08

PTL, wonderful news. In my thoughts & prayers, Love Judith

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13.07 | 21:33

Hi Anne-Marie - I found out about all this following a link someone liked on FB. I think of you all often. You brightened my life xxxxxx to you all.

04.06 | 18:38

That was and amazing story so pleased you are all doing well Kind Regards Sandra Rohrlach

08.03 | 17:48

Well done to all. Annemarie I did send a friends request on FB for "Josh updates" a couple of days ago(Mike Wish) but no reply.
Cheers to all from WA

25.09 | 20:01

We are staying at CCF Arrowtown, and we read about your family in the guestbook. You can read about our medullo journey at xox

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