Thursday 11th

I'm sorry about the long time/no blog... you get home and get absorbed in the 'ings' of life. Cooking, washing, vacuuming, cleaning, complaining and in my case medicating and temperature gauging. We have been housebound, but Joshua doesn't want to go anywhere anyway, he just wants to be home! At night it's been a case of musical beds, Georgia generally snakes in with her father and then despite the king size bed, turns into human glad wrap (very wriggly glad wrap I might add!) so Mikes been waking up tired, nothing to do with the three year old foot, that he has to pull out of his ear/neck/nose/bum in the mornings!

I on the otherhand, I've been snuggled with Joshua most nights in his new double bunk, I have alarms set for medication times through the night. But coming home brings with it new issues, mike is keen to get hold of the reigns of our business again, he's got lots of tidy ups to do. We're also heading into the quiet time of the year, so money is getting a little tight too!

Anyways it was a bit exhausting at home. Joshua had been running a low grade temp the whole time and keeping on top of his pain was a nightmare. So it was kind of a relief yesterday when I rang our 'Aunty Cath' Cath Mott, our outreach nurse and she told us to come in. Today, he's been started on morphine, but also might have a line infection, so we are here for a minimum three days....

Write a new comment: (Click here)
Characters left: 160
DONE Sending...

Connie | Reply 11.04.2013 22.33

Thanks for update think of you often
hope nothing too serious with Joshua
keep going one foot after the other you guys are amazing x x x

Kate Stynes | Reply 11.04.2013 19.51

Thinking of you guys - big hugs coming your way. xoxoxo

See all comments

| Reply

Latest comments

13.07 | 21:33

Hi Anne-Marie - I found out about all this following a link someone liked on FB. I think of you all often. You brightened my life xxxxxx to you all.

04.06 | 18:38

That was and amazing story so pleased you are all doing well Kind Regards Sandra Rohrlach

08.03 | 17:48

Well done to all. Annemarie I did send a friends request on FB for "Josh updates" a couple of days ago(Mike Wish) but no reply.
Cheers to all from WA

25.09 | 20:01

We are staying at CCF Arrowtown, and we read about your family in the guestbook. You can read about our medullo journey at xox

You liked this page