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Tuesday 26th

Well we have learnt in our cancer journey to have no expectations and to take things hour by hour and day by day and the last day and a bit since I last blogged is definitely a reflection of that.

Yesterday went really well, Joshua and Daniel were out in the corridor with their Ninja Turtles, having a great time. Nurses were having to duck on the way past so they didn't get wacked on the backside with a 'num-chuck'. He only vomited three times over the day which is good considering.

Then last night when they did his 8pm 'obs' his temp was really high and has been ever since. My night was temperatures of 39-40 degrees and projectile vomits. He's been asleep now for 20 hours, which is good in a way, but also worrying. He is having his last dose of chemo at the moment, I was surprised that they were still giving it, but we will just have to see how we go.

I had one of those 'sock you in the stomach' moments today, walking past the playroom, they were playing a 'mainly music' Cd.  I had an imeadiate flashback to Dancing with the kids at MATS. To another life, a life that's now gone. There's now a shadow, healthy kids is no longer a given, it's all changed.

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Latest comments

13.07 | 21:33

Hi Anne-Marie - I found out about all this following a link someone liked on FB. I think of you all often. You brightened my life xxxxxx to you all.

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04.06 | 18:38

That was and amazing story so pleased you are all doing well Kind Regards Sandra Rohrlach

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08.03 | 17:48

Well done to all. Annemarie I did send a friends request on FB for "Josh updates" a couple of days ago(Mike Wish) but no reply.
Cheers to all from WA

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25.09 | 20:01

We are staying at CCF Arrowtown, and we read about your family in the guestbook. You can read about our medullo journey at www.rorygardiner.co.nz. xox

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