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I've had the loveliest finish to a long day. I love my Joshua so much, not that I have to tell people that.

this morning, I started with coffee in the family room, it's like home, chatting with Chrissy, Bridget and Craig. Then we went to audiology, then we spent a long time in clinic, but the upside is, his kidneys are fine, his weight is good (go me!!!) his hearing is hanging in there, but some decline.

We had an awesome visit from uncle Patrick who tickled him mercilessly, Joshua was bouncing on the bed and behaving very not sick! His colour was great today. We finished  tonight declaring our love, holding hands in bean while we watched the movie 'cars'. A perfect day with my perfect manny!

Well we are off to auckland for round three tommorrow. Here's our boy with his 386 beads, giving his best cheesy smile. He is still needing morphine daily for the pain, but we have until Monday before chemo goes in. Here we go, over halfway now....
Boys hanging on the top bunk.....

We were discharged on saturday, it's been a nice few days at home. So we are now waiting until Wednesday, when we return to Auckland again. Joshua's pain is reasonably under control and he had a really nice time with his cousins on Saturday night. It was great to see him getting off the couch and playing.

Latest comments

13.07 | 21:33

Hi Anne-Marie - I found out about all this following a link someone liked on FB. I think of you all often. You brightened my life xxxxxx to you all.

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04.06 | 18:38

That was and amazing story so pleased you are all doing well Kind Regards Sandra Rohrlach

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08.03 | 17:48

Well done to all. Annemarie I did send a friends request on FB for "Josh updates" a couple of days ago(Mike Wish) but no reply.
Cheers to all from WA

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25.09 | 20:01

We are staying at CCF Arrowtown, and we read about your family in the guestbook. You can read about our medullo journey at www.rorygardiner.co.nz. xox

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