Monday 18th

Firstly... Happy birthday Nani Clare. Your the best sister in law a girl could have.

Secondly... The little Trojan in the bed is soldiering on! He didn't have the greatest of nights, it appears they might have ramped his nasogastric feeding up a bit quickly, so we just have to ride it out for a few more days and see how we go. They want to start him on oral morphine, but I'm not so keen on that idea, I'd rather see how we go on just panadol and tramadol for now.

So, I was hoping we'd be out tomorrow, but it will probably be Thursday. But even three nights is better than nothing! Just for his little spirit. He doesn't want to walk the ward because its boring, we need to get him down to the house, then he'll improve.

I slept down in the house last night, again it made a huge difference that uninterrupted sleep. We've also had a big boost in our friend families coming back, Craig and Claire and today Darcy arrived by ambulance again. So Mandy is back on the ward. I also met Sir Peter Leach in the lift today. He met another boy on the ward at the Warriors game on Saturday night and came up to see him. Nice eh. 

We also have another celebrity on the ward, with a sick child. I'm not sure if its public knowledge that their child has cancer. So wont let that cat out off the bag on that one, unless I get a chance to talk to them and ask if its ok.

its hardly like its rehab! Anyway team, it's status quo on ward 27b for now.

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Fay | Reply 18.03.2013 18.47

I love the photo Annemarie and I love your tunic top, what a mission for you going for a walk. I wish I could come up but John is not at all well at presentxxxx

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13.07 | 21:33

Hi Anne-Marie - I found out about all this following a link someone liked on FB. I think of you all often. You brightened my life xxxxxx to you all.

04.06 | 18:38

That was and amazing story so pleased you are all doing well Kind Regards Sandra Rohrlach

08.03 | 17:48

Well done to all. Annemarie I did send a friends request on FB for "Josh updates" a couple of days ago(Mike Wish) but no reply.
Cheers to all from WA

25.09 | 20:01

We are staying at CCF Arrowtown, and we read about your family in the guestbook. You can read about our medullo journey at xox

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