Thursday ? (Losing track of days)

Well if it isn't one thing it's something else. Overnight last night Joshua's temp went up to 40. I was up between 0230 and 0330 while he vommitted with the temperature and the terrible pain. I was also having to justify giving him a push of his pain button, to his nurse at 3am, while he was bolt upright with pain. The pain team were horrified when I told them this morning I was having to fight to get my child pain relief. It's just exhausting. So today he has gone onto a ketamine infusion, this is another pain relief/anaesthetic agent.

The good news is that his pain has improved today, he was 'pain free' for most of the morning. The bad news is his temperatures are through the roof and we don't know why. They can't find the source.

Mike has come back to Auckland today, which is great for morale. I had a big sleep this avo, and didn't have to get up to help Joshua out which was nice! I got to talk about normal things, the motel, the shed and didn't want to slap him, so must be feeling a little calmer at the moment. Normally, with Joshua so sick, I can't even tolerate hearing about the real world. It's just too much.

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Valerie Martin | Reply 15.03.2013 18.12

Hi! Fenton Park Bible Church continue to pray for you. I help at MATS & miss you. Lovely to see Mums & children coming look 4ward to you both coming back.

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13.07 | 21:33

Hi Anne-Marie - I found out about all this following a link someone liked on FB. I think of you all often. You brightened my life xxxxxx to you all.

04.06 | 18:38

That was and amazing story so pleased you are all doing well Kind Regards Sandra Rohrlach

08.03 | 17:48

Well done to all. Annemarie I did send a friends request on FB for "Josh updates" a couple of days ago(Mike Wish) but no reply.
Cheers to all from WA

25.09 | 20:01

We are staying at CCF Arrowtown, and we read about your family in the guestbook. You can read about our medullo journey at xox

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