Today is Thursday and we are now 48 hours back in Auckland. It's been a joyful homecoming, so pleased to see everyone at RMH, but the reality of being 'home' took its toll when we were informed of the death of a six year old a few days before, in the
cancer ward. Nothing like a bit of gravity to nail that false sense of security you build up briefly. But it's not our reality, So you just pick up and get on with it.
Wednesday morning we caught up with our Oncologist, Stephen, we were supposed to
have a lot of appointments tee'd up, which we didn't, so it's been a bit of a mad dash, up and down to the house/hospital like yo yo's, getting the business done.
This afternoon Joshua went to Theatre and had his Hickman line put into his chest, he
had to go to sleep with the aeroplane mask, (gas) which is quite unpleasant and as usual, he was a hero. It's very strange, I go into recovery and get greeted like an old friend by the Nurses. Joshua has had over 40 general anaesthetics now, I gave Georgina,
one of our favourite nurses, flowers at the end of radiotherapy. She said to me that she'd never been given flowers by a family before. That's the thing with working in recovery, you never get to know your patients, they don't remember you! So you don't get
the flowers or chocolates. And here we are, everyone knows who Joshua is, when his name comes up on the list.
We have to stay in for four hours, Joshua is already running around like a madman. I just took this photo of him doing "muscles". He's my muscleman,
that's for sure. He's now 18kg, heavier than before he was diagnosed, so we are in a good place for starting chemo.
So tomorrow we have a baseline kidney function test and an MRI scan, and then we go in on Sunday night and will be inpatients for 7 nights
if it all goes well.