Last night in Rotorua
How time flies! our five weeks has nearly gone and tonight, I sit here with the bags packed around me, ready to depart for Auckland again. It's been
a really strange time being home, it's just been so different. Firstly, Joshua was unwell the entire time. He's improved just over the past five days or so, but until then it was a really rough trot, with him vommitting everyday, losing his feeding tube, me
having to put back down, me crying outside everytime I had to put it back down, Mike had a day where he was miserable as well.
By last Wedensday, I'd had enough, we went to Hospital. I knew it would result in blood tests and scans, which it did.
Joshua had his most traumatic blood test ever, a poor nervous House Officer, who I think was quite traumatised by the whole affair, did her best, but when Joshua really decides he's not going to have something, it gets really rough!. By the time
we left ED, I wished we'd just driven the three hours back to Auckland, but once we were on the ward they were so lovely. They even let Daniel sleep over, which was great for Joshua.
On Thursday Joshua had a scan, which didn't show any swelling,
so the concensus, was just to truck on. The radiotherapy is still obviously doing its thing, which is good, but my rosey veiw of Joshua running along the beach full of energy and eating like a horse, just wasn't to be. We did get to the lake four times,
but only the first time was really fun for Joshua, the other three times he was pretty miserable, hung out on my knee or sat under a towel in the sand. We were going to meet friends out there on Sunday (Joe and Monique), but we went to the market in the
morning, we did our usual thing, mucked around to long getting ready and by the time we got out there, he was already past it. He had a massive hissy fit and had to go home to bed for three hours. So poor Joe and Monique were driving home as we were going
out to the lake! sorry guys.
But since Sunday, things have improved. Joshua threw up for the last time at 4.30 in the morning on Tuesday. He's also turned into 'Mr Brave' about his 'tubie'. He just lies back and lets me put it down, which
is just wonderful, for him and for me. We developed a thing called the 'treatbox' not long after we got home, which is full of toys, particularly 'Ninjago' lego, which is the boys favorite. We now have made a really cool 'treatbox' which all the kids decorated.
So when he has to have his 'tubie', we blindfold him afterwards and he gets to choose something from his 'treatbox'. So it's just been hugely positive for us.
The house is lovely... it's a real home. I've loved having the time to make it mine. it's
an iconic house in this town, everyone knows it and I'm so proud telling people we own it. The boys have sat out on the front lawn driving their trucks through the dirt, Mum spent a whole day detangling the garden, it's all ready for me to have some fun with,
when I get home. I've loved sleeping in my bed, with Millie the Kat purring on my shoulder. I've loved opening my beautiful 'villa' windows in the mornings. The only thing I havn't loved...is the flies. You'd swear we were living in a giant cow pat, there
were so many.
So, having a child with cancer, you want to tackle things organically. So to start with, I had the 'chemical free' flyspray, which smelt like deepheat. I think some of the flies left because they didn't like the smell, but only a few dozen.
So after that, I went for the 'sticky, hanging things', but again, they did reduce the number, but only by about fifty, over two days.
Then Mother arrived. We took to counting them on the ceiling at night. Mother took to spraying the house with 'non-organic'
flyspray at night, when the patient was asleep in his room. She emptied a whole can, we've all probably got cancer now, but the flies were still bonking on my kitchen bench.
So finally I relented, went to the supermarket and bought four automated fly
zappers, with odourless poison. I figure that by the time Joshua has had four months of round-up, pumped into him intravenously a little flyspray isn't going to hurt. It's always the pay off between two evils anyway, the dirty flyfeet or the poisonous spray,
have declared war on flyfeet and won.
Mike has had an incredibly busy time getting the 'old house' finished. It is now our beautiful unit 16 and is just gorgeous. Patrick and Kathy our managers have done a sterling job, have put up with alot and we
are so pleased to have them. They are on the job now until June. We've employed them to the end of Joshua's treatment.
Daniel has been back a school but is now about to go again, all the kids are looking forward to going back to Auckland, i'm really
looking forward to being back amongst my support network. Being home has been isolating, you feel secure when your with others like yourself. Particularly me, i'm a talker! I dont want people to 'invite me over', I can't go, I have a sick child,
but I love it when people call in and give me their time. All I need is a listening ear, it makes all the difference.
Right team, see you in Auckland, we arrive on Tuesday. Wednesday, Thursday and Friday are busy with tests, them Chemo Starts
on Sunday night.