Stage One Complete

14/11/12

Today is our 20th day at Starship. When Patrick came to see us this morning, he said that the inflamatory markers in Joshuas blood are improving, so it's a virus not a bug. Joshua has improved another 50% over today and we are going to be 'handed over' to the Oncology team tommorrow.

This means that Joshua will be sleeping at our "Auckland House" for the first time tommorrow night, after three weeks here. He will be 'free' from treatment until Monday, when over three days his radiotherapy planning will be done. We then have a two week break until we start. During this time, we will still be here most likely having physiotherapy, we still have a ways to go' to get Joshua walking again, but I'm sure it will be much improved when we are out of the Hospital scene.

Everyday has it's challenges, Joshua being out of the Hospital all day today and feeling well, is realising he's not like other kids now. He was sitting on the floor on Nana's knee at lunchtime, and threw himself onto the floor, banging his head. "what were you doing?", I asked as I consoled him on my lap. "I was trying to jump like a frog" He said. He was quite distraught, he has always been my outside boy, so suddenly not having a body that works properly is tough, but I have faith he'll get there.

Georgia and Joshua are also having issues. Now that we are spending more time at the house, Georgie has decided that she would like her Mummy back, thanks Joshua. You look ok now mate, so I would like to reestablish my position as 'top dog' now thanks. Joshua is 'no way, Hose!' kicks her if she gets to close, screams at her, we had a bath and poor Georgie was terrified of him, he's so aggressive to her. I'm in the middle, having to choose in every situation, who's need is the greater. It's not going to be an easy road negotiating 'normality'.

But he is doing so good. The Sonshine is out and I am basking.

We had a moment today, I was feeding him his cocopops and he was scoffing them and we kept grinning at each other like idiots. He knows we are winning, I know we are winning, our soul tie tells me, I can see it in his eyes, this is not going to beat us.

The Green House is going unconditional today, we now own 4 Margeritia St (Thanks Gordon and Cheryle) This is going to be our home, next to the motel. The kids are going to grow up here. Sometime in 2018, 5 years after Joshua's treatment is completed, there is going to be a ceremony. A funeral of sorts, but not for a child. It's going to be for the beads, there will be strings of them, one for every procedure he's had, and we are going to bury them in the ground, Mark my words.

I saw it in Joshua's eyes today, Others I trust have told me we'll be fine, but I needed to hear it from his soul.

We still have a long way to go, but we are going to win it. I know and so does Joshua.

Stage one complete.

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Nadia Burborough | Reply 30.11.2012 15.56

I cry with every page I read. You are such a strong woman, and your family sound amazing. I hope with all my heart the Sonshine keep shinging for you all xxx

Annemarie 30.11.2012 16.10

Please don't cry... That's my job:)

Leeanne Elliott | Reply 24.11.2012 00.32

Sending you all my love & best wishes for you little man, I think you are a amazing woman to share your story xx leeanne Elliott (house of Elliott hairdressing)

Annemarie 30.11.2012 16.12

Thanks Leeanne, how did you hear?

Toni | Reply 19.11.2012 23.28

The only way is up. Love you all. Your strength is enough to feed a nation. Look forward to helping you round the corner.

Kerry Brown | Reply 17.11.2012 20.56

You are such an amazing family and I'm sure you will get through it and you will be even stronger at the end. Love to you all xxx

Lena & Iwan | Reply 17.11.2012 19.34

... and we know too that YOU WILL WIN !!! You're always, always in our minds !!! BIG HUG from the entire SWISS TRIATHLON TEAM and especially from Lena & Iwan

Fay Henderson | Reply 15.11.2012 23.34

You are a strong family with great faith and a positive outlook which is really good to see God Bless, hope to see you next week. Lots of Love

colleen sowerby | Reply 15.11.2012 11.57

hope and faith pray and love and a strong will from Joshua, family ,friends and wellwishers have surely helped this little lad fight the battle of his life

Connie | Reply 14.11.2012 22.59

20 days has gone fast (at least to us on the outside!) climb this mountain one step at a time. You will get there! thanks for the posts

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Latest comments

13.07 | 21:33

Hi Anne-Marie - I found out about all this following a link someone liked on FB. I think of you all often. You brightened my life xxxxxx to you all.

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04.06 | 18:38

That was and amazing story so pleased you are all doing well Kind Regards Sandra Rohrlach

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08.03 | 17:48

Well done to all. Annemarie I did send a friends request on FB for "Josh updates" a couple of days ago(Mike Wish) but no reply.
Cheers to all from WA

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25.09 | 20:01

We are staying at CCF Arrowtown, and we read about your family in the guestbook. You can read about our medullo journey at www.rorygardiner.co.nz. xox

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