Today is our 20th day at Starship. When Patrick came to see us this morning, he said that the inflamatory markers in Joshuas blood are improving, so it's a virus not a bug. Joshua has improved another 50% over today and we are going
to be 'handed over' to the Oncology team tommorrow.
This means that Joshua will be sleeping at our "Auckland House" for the first time tommorrow night, after three weeks here. He will be 'free' from treatment until Monday, when over three days his radiotherapy
planning will be done. We then have a two week break until we start. During this time, we will still be here most likely having physiotherapy, we still have a ways to go' to get Joshua walking again, but I'm sure it will be much improved when we are out of
the Hospital scene.
Everyday has it's challenges, Joshua being out of the Hospital all day today and feeling well, is realising he's not like other kids now. He was sitting on the floor on Nana's knee at lunchtime, and threw himself onto the floor,
banging his head. "what were you doing?", I asked as I consoled him on my lap. "I was trying to jump like a frog" He said. He was quite distraught, he has always been my outside boy, so suddenly not having a body that works properly is tough, but
I have faith he'll get there.
Georgia and Joshua are also having issues. Now that we are spending more time at the house, Georgie has decided that she would like her Mummy back, thanks Joshua. You look ok now mate, so I would like to reestablish my
position as 'top dog' now thanks. Joshua is 'no way, Hose!' kicks her if she gets to close, screams at her, we had a bath and poor Georgie was terrified of him, he's so aggressive to her. I'm in the middle, having to choose in every situation, who's need is
the greater. It's not going to be an easy road negotiating 'normality'.
But he is doing so good. The Sonshine is out and I am basking.
We had a moment today, I was feeding him his cocopops and he was scoffing them and we kept grinning at each
other like idiots. He knows we are winning, I know we are winning, our soul tie tells me, I can see it in his eyes, this is not going to beat us.
The Green House is going unconditional today, we now own 4 Margeritia St (Thanks Gordon and Cheryle) This
is going to be our home, next to the motel. The kids are going to grow up here. Sometime in 2018, 5 years after Joshua's treatment is completed, there is going to be a ceremony. A funeral of sorts, but not for a child. It's going to be for the beads, there
will be strings of them, one for every procedure he's had, and we are going to bury them in the ground, Mark my words.
I saw it in Joshua's eyes today, Others I trust have told me we'll be fine, but I needed to hear it from his soul.
have a long way to go, but we are going to win it. I know and so does Joshua.
Stage one complete.